I've begun this site in hopes that it's found to be helpful as a communication tool for moms who are dealing with JHD or HD in with children (adult children included). It's clear that no two HD patients are the same in terms of symptoms or circumstances. I have a son and daughter both with HD, only two years apart in age, and both are very different. My objective here is to help one another the best we can, to share some of our stories, insights and suggestions, all in a non-judgmental fashion. No one knows our particular situation but we are all connected in our love for our children and our desire to keep them safe and happy while we wait for our cure.
I'm hoping this blog reaches as many moms as possible so please pass the word. If there are questions you have that someone may have dealt with before you, let us know. If you have found something that works well, let us know. If you need to vent because things aren't working for your loved one, let us know. I want this to become a forum for advice and compassion so let's reach out to one another and help each other out.
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