Criteria For JHD vs HD

I've seen a couple different versions of the data criteria for determining whether or not a patient is considered JHD.  My daughter was diagnosed before age 20 and has a repeat number of 69 so was clearly diagnosed as JHD.  My son, however, was told his is adult onset originally but the neurologist he sees now said with a repeat of 55 (50 or more) and symptoms beginning in early twenties, he is JHD as well.  Not that this makes much difference as we still cannot stop this beast in its tracks, but it's interesting to know from this standpoint:  HD is rare, JHD is more rare, and with the small number of JHD patients in one state, for instance, we have two of them.  And even though they are siblings, only two years apart, their symptoms are most definitely not the same.

I'm interested in finding out if others see very different symptoms among close siblings.

Loss

I'm saddened by the loss of another young life to JHD. This young lady is near the age of my daughter and was diagnosed just a few years prior.  I'm sure I'm not alone in all the wondering about the things we do, or don't do, and what might have an effect on the length of time we have with our loved ones.  I like to think that maybe some of my proactive moves are helping my daughter and son to hold on longer, and possibly be around for a cure someday.